A DATE FROM ROYAL MAIL HAS BEEN CONFIRMED FOR THE START OF MILLOM
POST OFFICE RAMP CONSTRUCTION AS THE 5TH JULY 2010 AND SHOULD TAKE
APPROX 4 WEEKS, THIS IS INDEED BRILLIANT NEWS FOR THE SOUTH COPEL;AND
DISABILITY GROUP, NOW THE DISABLED COMMUNITY CAN HAVE THE SAME
FACILITIES AS NON-DISABLED AND BRINGS THE POST OFFICE TO THE D.D.A. ACT
BUT IT WILL MAKE ACCESS EASIER FOR THE OLDER PERSON WHO FIND CLIMBING
STAIR DIFFICULT, AND MOTHERS WITH BUGGIES WHO DO NOT WISH TO LEAVE
THEIR CHILDREN OUTSIDE ALONE
SCDG ARE ANGRY AT BEING TOLD THAT £650,000 IS BEING CUT FROM DISABILITY GRANT FUND, THE COUNCIL SAY IT WILL NOT AFFECT THE DISABLED, JUST THAT THEY WILL HAVE TO WAIT LONGER FOR THE FACILITIES, IF YOU CANNOT GET UPSTAIRS OR GET SHOWERED NOW, WAITING IS JUST A HEALTH OR INDEPENANCE PROBLEM, REQUIRING IMMEDIATE ACTION NOW, NOT LATER
SCDG ARE NOW A REGISTERED CHARITY FOR TAX FROM 9TH AUGUST 2010..WHICH MEANS EVEN THOUGH WE DO NOT RECIEVE £5,000 ANNUAL INCOME, OUR "CONSTITUTION" IS LAWFUL...AND SHOULD BE ENTITLED TO APPLY FOR GRANTS/FUNDING FROM MANY MORE FUNDERS
SCDG GET FUNDING TO PROVIDE A WHEELCHAIR FOR MILLOM DOCTORS SURGERY
Alison Knagg "Practice Manager" receiving chair from SCDG Sec. Noel Moore
SMALL HEARING AID EXHIBITION ON THURSDAY 18TH NOVEMBER MORNING IN THE MILLOM NETWORK CENTRE "HAVERIGG SUITE" ARRANGED BY THE ST JOHN`S HEARING AID CENTRE GRANGE
MR BOB MANDALE WILL LAY THE POPPY WREATH ON BEHALF OF THE SCDG AT MILLOM REMEMBRANCE SERVICE SUNDAY 14TH NOVEMBER ..
CHARITY BINGO, RAFFLE , CONCERT ALL PROCEEDS WILL GO TO THE SCDG FUNDS...COME ALONG AND HELP MAKE IT A SUCCESS.. MILLOM KSC CLUB AT 7-30PM.....£3-00 FOR 6 HOUSES...RAFFLE 50P PER STRIP....ALL PRIZES PRIZES PRIZES.
FRIDAY NOVEMBER 19TH....7-30PM
THE FINAL AMOUNT MADE £88-00 THANKS FOR ALL THE SUPPORT
THE SCDG HAVE BEEN AWARDED £225 FROM THE BOOTLE & SEASCALE NEIGHBOURHOOD FORUM, AND £225 FROM MILLOM NEIGHBOURHOOD FORUM...WE CAN NOW PURCHASE THE AUDIT TOOLS REQUIRED TO CARRY OUT AUDIT ASSESSMENTS....
Cllr Ray Cole SCDG Sec Noel Moore Cllr Sue Brown SCDG Chair Gary Jackson
TOOLS FOR AUDIT ASSESSMENT OF BUILDINGS TO DDA COMPLIANCE
MILLOM CHRISTMAS FAIR...SATURDAY DECEMBER 4TH 2010.....
SCDG HAD A STALL IN THE MILLOM CHRISTMAS FAIR, SELLING RAFFLE PRIZES DONATED BY..TESCO...PATTON`S FAMILY BUTCHERS...THE BAKEHOUSE..AND MILLOM MEMBERS & FRIENDS...THANKS TO YOU ALL..SCDG COMMITTEE
GRAND OPENING BY THE MAYOR
SDCG STALL WIH STELLA & GARY
ON FRIDAY THE 17TH DECEMBER THE SUB POSTMASTER INVITED SOUTH COPELAND DISABILITY GROUP AND THE NORTH WEST EVENING MAIL TO THE OFFICIAL OPENING OF THE COMPLETED RAMP AT MILLOM POST OFFICE, THIS HAS BEEN AN ONGOING CONCERN FOR OVER 2 YEARS.
WE ARE PLEASE TO REPORT IT IS JUST PERFECT, CARA WILLIAMS & ALTA STANSFIELD WHO HAVE NOT BEEN IN THE POST OFFICE FOR OVER 10 YEARS WERE OVER DELIGHTED WITH NOW BEING ABLE TO GO IN AND DO THEIR OWN SHOPPING.
DISABILITY GROUPS ACROSS THE COUNTRY DISGUSTED WITH NEW PROPOSALS
South Copeland Disability Group are among countless other groups up and down the country, who are demanding the Minister for the Disabled Maria Miller, to rethink about the proposed major overhaul of the now Disability Living Allowance, which is a tax-free allowance, to help disabled people pay for extra help they require to try and live a near normal life.
The DLA will be replaced with (PIP) Personal Independent Payments, which could be estimated on the mobility a disabled person suffers, meaning a person who is more mobile in a wheelchair than another could be classed as needing less (PIP).
ON THURSDAY 10TH FEBRUARY THE SCDG WERE INTERVIEWED ON RADIO CUMBRIA ABOUT THEIR VIEWS ON MARIA MILLERS PROPOSED REFORM OF THE DLA
REPLY TO OUR COMMENTS BY MARIA MILLER
THE SCDG SUPPORT THE BDDA OVER BLUE BADGE REFORMS
THE SCDG HAVE RECEIVED FUNDING FROM SELLAFIELD SNOWBALL CHARITY TO PURCHASE A "TALKING" MICROWAVE FOR BLIND MEMBER BARBARA CRELLIN AFTER HERS BROKE DOWN BEFORE CHRISTMAS...THE COMMITTEE THANK ALL WITHIN THE SNOWBALL CHARITY FOR THE GENEROUS OFFER...
SCDG HAVE NOW TO ANNOUNCE THAT THEY ARE CLOSING THE CIL DROP IN CENTRE HELD IN THE BRADBURY CENTRE FOR THE LAST 12 MONTHS AS WAS AGREED, BUT THE SCDG WILL CARRY ON THE GENERAL BASIS BY STILL DEALING WITH PROBLEMS AND INQUIRIES BY THE GENERAL PUBLIC.
THERE HAVE BEEN THINGS SORTED FOR PEOPLE, BUT IT DOES NOT JUSTIFY THE DROP IN CENTRE BEING MANNED FOR 3 HOURS.
ANY PROBLEMS PHONE THE CHAIR/SECRETARY ON THE PHONE NUMBERS ON THE "CONTACT" PAGE
||AT THE SEASCALE "TOGETHER WE CAN" THE SCDG HAD A STALL, PHOTO OF THE CHAIR & SECRETARY HARD AT WORK THE SCDG STALL GARY USING THE AUDIT TOOLS CHECKING RAMP GRADIENTS
AT THE ANNUAL A.G.M. CHAIR.VICE-CHAIR SECRETARY.TREASURER...WERE ALL VOTED BACK INTO OFFICE, AND PETER LANCASTER WAS VOTED IN AS "FUND RAISER"
SATURDAY 7TH MAY THERE WAS A "KITEFEST" HELD AT MILLOM RUGBY UNION CLUB HAVERIGG, IN WHICH WE HAD A RAFFLE STALL, WITH MANY PRIZES DONATED, MUNCASTER CASTLE,POWER WORLD, GREEN`S BAKERY, FERGUSON, BARGAIN BOOZE, WHARTON GARAGE, PATTON BUTCHERS, WE WOULD LIKE TO THANK THESE BUSINESS`S FOR THEIR GENEROUSITY..
NEW GROUP TO PROTECT COASTLINE
A new group has been launched to help promote and protect an award-winning stretch of coastline.
BEAUTIFUL:Silecroft beach, West Cumbria
The Copeland Coastal Partnership is made up of 28 organisations.
They will work together to help improve the coast for visitors and residents, along with improving the environment and boosting the economy.
The stretch of coast runs from the River Duddon to Lowca, north of Whitehaven, and includes four beaches of eight in the North West which received the Quality
The partnership will look at how the coast can be opened up with improved public
access and events promoting its natural beauty. Copeland Borough Council last
year pledged £200,000 to coastal towns and villages which will help the scheme.
The groups that pledged their support include the Lake District National Park Authority, South Copeland Disability
Group, South Copeland Tourism Community Interest Company, Natural England, Copeland Borough Council, Haverigg Inshore Rescue and Muncaster Estate.
South Copeland Disability Group will be looking at improving disabled access to the coast with access at Haverigg beach being made a
COFFEE MORNING SATURDAY 16TH JULY 2011
WE HELD ANOTHER QUITE SUCCESSFUL COFFEE MORNING, REGARDLESS OF THE POOR WEATHER CONDITIONS, WHICH DID NOT PUT OFF ALL THE COMMUNITY....
WE STILL MANAGED TO TOTAL £182-55.
PAT NELSON WON THE £25 FOR THE BONUS BALL...NUMBER 30
WE THE MANAGEMENT COMMITTEE WOULD LIKE TO THANK ALL THOSE THAT HELPED ON THE DAY, THOSE WHO SUPPLIED CAKES AND BRIC A BRAC, THE SERVICES OF MR BOB TYSON WHO ACTUALLY SOLD THE BONUS BALL TICKETS FOR US, AND YOU THE PUBLIC COMMUNITY, WHO CAME ON THE DAY.
THERE IS NOW A RECYCLING OF DISABILITY AIDS, ALSO AVAILABLE TO PURCHASE
IF YOU CAN GET IN TOUCH WITH EITHER THE CHAIR OR SECRETARY 01229774959/01229773341 TO ARRANGE COLLECTION
tHIS DOES NOT INCLUDE STAIRLIFTS...BECAUSE OF HEALTH & SAFETY, ONCE FITTED THEY WILL NOT FIT OTHER PREMISES
North West Evening MailNews Disability group to hold county protest
CAMPAIGNERS are planning to organise a major protest in South Cumbria against cuts to disability benefits and services.
A series of demonstrations organised by the Hardest Hit campaign will take place on October 22 in cities across the UK.But
rather than travelling more than 100 miles to Manchester, Leeds or
Edinburgh, South Copeland Disability Group is planning to hold its own
event in South Cumbria.Members of the group heard about the
demonstrations at a recent meeting and decided to hold their own event
as a show of solidarity.Group member Peter Lancaster said: “I think if we had a protest in Millom, it would work.“It would be better protesting here than travelling.”Noel
Moore, secretary of South Copeland Disability Group and the Cumbria
Centre for Independent Living Forum, said: “If we hold an event in
conjunction with the national ones and get some names forward, it’d be a
good idea for Millom and for the wider area.”The group hopes to hear from campaigners and people affected by the cuts from across South Cumbria.The
Hardest Hit, a joint project between the UK Disabled People’s Council
and the Disability Benefits Consortium, involves groups including the
Disability Alliance, Mencap, the Motor Neurone Disease Association and
the MS Association.Lindsay Armstrong, spokeswoman for the Hardest
Hit, said: “Though we are not directly involved with the event, any
support for the Hardest Hit campaign is welcomed by us.“As part of the government spending cuts, authorities are making cuts to budget for benefits and disabled services.“We welcome support for the campaign either at a national level and would urge anyone concerned to contact their MP.”If you’d like to get involved in a protest in Millom or South Cumbria, email Mr Moore at firstname.lastname@example.org.
LANCASHIRE ROAD PUBLIC TOILETS
Copeland Borough Council is planning to either sell or failing that demolish these public toilets, because of budget cuts, this would make visitors shopping at Tesco having to trail towards the park to the only other public toilets, but these do not have proper parking facilities, and would cause traffic problems, worse still if it is disabled or mother and children having to make this journey.
These toilets have proper parking area including disability parks, and any visitor to the area and shop at Tesco, will find it awkward if wanting to spend a penny before or after shopping and going home.
The SCDG is hoping with other groups to find an alternative to save them from permanent closure..
SOUTH COPELAND DISABILITY GROUP LOSES CAMPAIGNER
BOB MANDALE ONE OF THE CAMPAIGNERS FOR THE SOUTH COPELAND DISABILITY GROUP HAS PASSED AWAY AFTER A SHORT ILLNESS.BOB WAS VERY PASSIONATE ABOUT DISABLED ACCESS TO BOTH THE NATURE RESERVE AND HAVERIGG BEACH, HE WAS ON EACH COMMITTEE REPRESENTING THE SCDG.
HE LAID THE POPPY WREATH ON BEHALF OF THE SCDG WITH PRIDE, ESPECIALLY WITH BEING AN EX-SERVICEMAN.
WE WILL MISS HIM AS HE ALWAYS HAD PLENTY TO SAY AT THE MONTHLY MEETINGS
Changes to the Motability scheme
Disabled Motoring UK was saddened to hear the announcement from Motability today that significant changes will be made to the Motability
scheme. Although these changes are being made to ensure the scheme is protected in years to come there will be less choice for customers in
the type of car they can choose.”
When making the announcement Motability Chairman Lord Sterling said: “Despite meeting the mobility needs of disabled people for over 33 years, it is
very important that we are not complacent. We must continuously strive for excellence by examining and refining all aspects of the Scheme.
During 2011, we have reviewed a number of issues including the range of cars available on the Scheme and the clarity of our policies on how the
cars are used and by whom.”
The changes announced today include: Limiting the range of vehicles available to cars with an Advance Payment of £2,000 or less, approximating to a Recommended Retail Price limit of circa £25,000. The changes to car selection take place immediately, although Motability will honour all existing orders and commitments, changes will be fully implemented in December 2011.Limiting the nominated drivers to those who live within 5 miles of the customer in order to minimise the risk of the car being used other than for the benefit of the disabled personPiloting new vehicle technologies to monitor how cars are used where the greatest risk of abuse is perceived.Requiring a Statement of Responsibilities to be signed at the beginning of each lease by the customer and nominated drivers together with the supplying motor dealer to ensure that the key responsibilities of each party have been communicated and are clearly understood.No longer accepting nominated drivers under the age of 21 on the Scheme from January 2012, unless they reside with the disabled
customer. Restricting young drivers under the age of 25 to cars in ABI Insurance Group 16 or lower which also have a power output of 115 BHP or
Behind closed doors
Disabled women are twice as likely as non-disabled women to experience domestic violence, are less likely to report it and are more
likely to experience it for longer before attempting to escape, ground-breaking new research finds. Katharine Quarmby asks what can be
done to change this bleak picture "At night times he’d be in the living room and I’d be in my bedroom and he’d shut the door on me…if I wanted to use the toilet or anything he’d tell me to piss myself there and then. Now obviously for me if I was non-disabled I’d be able to get up and do it…There was slapping on the
face, chucking me out of the wheelchair.”
This is just one of the
stories uncovered by the first comprehensive, national piece of research on disabled women’s experience of domestic violence, what their
needs are and what services are available to them, published this summer by the charity Women’s Aid. Disabled consultants were involved in
the research by the Violence against Women Research Group and the Centre for the Study of Safety and Well-being, at the Universities of
Bristol and Warwick respectively. They focussed on disabled women with physical and sensory impairments (funding was not available
to extend the project to interview women with learning difficulties and mental health problems). They held a focus group with disabled women,
interviews with activists and practitioners, two surveys of domestic violence organisations and disability organisations and
in-depth interviews with 30 disabled women who had experienced domestic violence.
The definition of domestic violence was extended to cover the different types of violence experienced by disabled women: “Disabled women
experiencing abuse from partners, ex-partners, other family members, or personal assistants (including paid and informal care workers).”
A growing body of research suggests that disabled women are more likely to be abused than non-disabled women and that their impairments are
often used as mechanisms of control by the abuser.
One wheelchair-user talked about her enforced isolation: “One time he actually took the battery out of this wheechair I’m in now. He just
unplugged it so I couldn’t move…and [he would] shove me about sometimes and push me hard.”
One interviewee said: “He took my complete independence where I had to ask him a fortnight before I needed sanitary
towels to make sure I’d get them.”
A deaf woman was sexually abused by her partner: “Being Deaf is hard work…you have to concentrate so much harder and tiring…to lip-read all the time…I’d be exhausted. And he’d be furious and slap me and kick me awake…it was sex all the time, twice a day and he would shout at me and then hold me down and I hated
it, I hated it.”
Most of the disabled women interviewed were abused by intimate male partners but a number of paid carers or personal
assistants (PAs) also abused women, leading to calls for this to be recognised by the police as domestic violence.
One woman said: “I have been stolen from and abused by my care workers and then there was a huge argument with social services and the housing people because they refused to believe it or even investigate it. They were just on the care workers’ side.”
A number of those interviewed said that social care professionals did not want to believe that they were being
systematically abused, whether by carers or partners. Some disabled women did not recognise what happened to them as abuse, and others
feared that if they told social services about the problem, they would be institutionalised or their children taken away. Very few refuges were
accessible and many women believed that they could not be accommodated according to their needs – with reason. Only half of refuges surveyed
had full wheelchair access, half had an adapted shower, only half had reachable light switches and sockets and only 17 per cent had services
for people with visual impairments. Refuges, already very overstretched in budgetary terms, acknowledged that they wanted to do more, but
struggled with resourcing issues to make adaptations.
Another problem was that women found it difficult to move area to escape violence because that might mean that they would lose their care
package, PAs and adapted accommodation. They had more complex needs than non-disabled women, such as transport, assistance with personal care or
sign language interpreters, that were less likely to be met. Most interviewed had experienced abuse over a long period of time, ranging
from one year to 22 years and some had been abused by more than one person.
Very few disability organisations surveyed considered dealing with domestic violence to be part of their remit. Only four out
of 73 employed dedicated staff with domestic violence expertise.
In all, 133 local domestic violence services responded to the survey, and just over one-third said they offered some form of specific service to
disabled women. Many were attempting to make their refuges accessible, but over three-quarters believed they would breach the Disability
Discrimination Act. Around half provided disability equality training, and disabled women accounted for seven per cent of users of those
services. There is some good practice, but it is patchy – there is only one refuge for women with learning difficulties in the UK. Leeds council
has also trailblazed in developing good practice for disabled women experiencing domestic violence – and employed a disabled project worker
to develop the work of the Leeds Interagency Project. The project has produced a free video and training pack, Disbelief, provides one-to-one
support for disabled women and has produced accessible information. The local refuge is also one of the few to have been refurbished with
accessibility in mind.
Dr Ravi Tiara, one of two academics who carried out the research, said they had found that disabled women were
enduring domestic violence for long periods of time before disclosing it and that those with high dependency needs were more likely to
experience high levels of abuse.
Women had their medication stolen, their direct payments were taken from them and those interviewed felt that abuse from carers was “widespread and common”. She concluded that “abuse was preferable to care agencies moving in” and that women endured abuse because they had “nowhere to go”. Even when they did go,
she added, because of the dearth of accessible accommodation, they were more likely to experience post separation violence for a longer period.
Diane Mulligan, a commissioner at the Equality and Human Rights Commission (EHRC), describes the research as “key” and says that its findings will
help push the issue “up the agenda”.
She says that the EHRC will discuss why so few disability organisations see domestic violence as their remit and whether it can fund work and awareness-raising in this
area. The commission will be publishing its own recommendations for reform of domestic violence services and addressing violence against
women in the late autumn.
In addition to the research recommendations, Women’s Aid is to review whether it needs to produce new guidance or checklists for its services.
Ruth Bashall, who provided disability equality training to the researchers, says that disabled people’s organisations, which could reach out to victims of
domestic violence, are overstretched and that too many remain male-dominated. She says: “There is a real fear of being perceived as a
vulnerable victim,” and that many disabled women fear that they will be institutionalised if they report abuse. “We are determined to stay in
the community,” she says, and adds that the portability debate – the ability to take your package of support with you if you move to a
different part of the country – is key to helping disabled women flee domestic violence.
Anne Pridmore, chair of the engagement and influence committee at Scope, who was consulted on the project, says
that “disabled women and their experience of violence have been neglected for far too long.” She welcomed the research into carer and PA
abuse. “I think that there are many forms of abuse, that people don’t see as such…with personalisation and individual budgets there will be
people employing their own PAs and carers and it is very difficult to prove when abuse happens, and very difficult to dismiss someone.” She
was not surprised by the level of abuse endured by women from intimate partners. “A lot of disabled people are trapped in relationships that
non-disabled people would leave,” she says, “because they can’t get the funded support they need.” Behind closed doors
SCDG HAVE ON THE STRENGTH OF GRANTS AND DONATIONS PROMISED, HAVE NOW BEEN ABLE TO BOOK THE MILLOM NETWORK CENTRE FOR MEETINGS FOR THE NEXT 5 YEARS, THAT`S FROM JAN 2012- DEC 2016.
IN MEMORY OF BOB & MAUREEN MANDALE
THE SCDG ARE TRYING TO RAISE £400 TO PURCHASE A WOODEN BENCH TO PUT ON THE NATURE RESERVE IN MEMORY OF BOB & MAUREEN MANDALE
Mobilise for DLA
You did it! Government maintains mobility allowance for people in residential care
After more than a year of hard work, meeting MPs, writing letters to the Minister, talking to the press and
supporting the Hardest Hit protests, you've done it! The mobility component of Disability Living Allowance (and the benefit that will
replace it, Personal Independence Payment) will not be removed from people in residential care!
The action you and thousands of campaigners have taken means that the Government has listened to disabled people and decided not to take away
This decision will be a huge relief to thousands of disabled people worried that without their mobility allowance they would have been
trapped in their homes. Clare Pelham, Chief Executive of Leonard Cheshire Disability, said:
"We applaud the Government for listening to the thousands of disabled people who have raised this issue, and reversing the plan to scrap this
vital benefit. This allowance is just so important for those who receive it – it can make the difference between being able to get out
independently, and being trapped inside.
"Lord Low's recent review of the mobility component of Disability Living Allowance showed very clearly that this benefit provides crucial
support for people in residential care that is not being met from elsewhere. "Responsible government is about active engagement with those people
most affected by proposals for legislation. We are delighted that they have chosen to listen to disabled people and make this change. We look
forward to working positively with the Government in future on other important proposals."
Mobilise for DLA
CHRISTMAS FESTIVAL 2011
THE SCDG MADE APPROX £250-00 ON THEIR RAFFLE STALL....
AND WOULD LIKE TO SAY THANKS TO ALL THOSE WHO SUBSCRIBED
THE SCDG WOULD LIKE TO THANK THOSE BUSINESSES WHO HAVE DONATED PRIZES OVER THE LAST TWO YEARS:-
BOOTS LTD, FERGUSONS, T TOOLS, BARGAIN BOOZE, PATTON`S BUTCHERS, GREENS CONFECTIONARY, POWER WORLD, GAYNORS STORE, MUNCASTER CASTLE, TESCO
Poison pen mail sent to Millom woman
PEOPLE are being urged not to suffer in silence after a disabled woman received a string of ‘poison pen letters’.
JACKSON CHAIR OF S.C.D.G
The anonymous letters, which accused the woman of faking a disability to get more benefits,were posted to her home in Millom.
A disabled action group has now stepped in to help her.
South Copeland Disability Gary Jackson, chairman of the group, said he was left stunned by the incident.
Mr Jackson also chairman of the Cumbria Centre for Independent Living, said he believed many
similar offences went undetected and urged disabled people subjected to hate crime not to suffer in silence.
He said: “We were quite shocked to hear about this incident, particularly given all the work that the SCDG has done to highlight disability issues
in our community.“However, we take comfort that the Cumbria police take disability hate crimes very
seriously.”Hate crime is defined as a criminal offence motivated by prejudice against a person due to an
actual or perceived difference.Harassment,verbal abuse, threats and violence are just a handful of offences that are
classed as hate crimes.
Mr Jackson said disability hate crime often goes unreported, with the public being more aware
of racially motivated and sexually motivated offences.He said:“Unfortunately, the public is largely ignorant about the existence of
disability hate crime and that is why it is so important to raise awareness of disability hate crime and ensure that as many victims as possible access support.
“Disabled people shouldn’t suffer in silence and we would encourage disabled victims of hate crime to report the crime either directly to the police or through a recognised
third party reporting centre such as the South Copeland Disability Group.”If you or someone you know has been affected by hate crime, you can phone police on 101
or make arrangements to meet plain clothed officers somewhere other than a police station.
Alternatively,groups such as South Copeland Disability Group offer a third party reporting service by phoning secretary Noel Moore on 01229 773341.
S.C.D.G. RECEIVE FULL CHARITY STATUS
ON FRIDAY 23RD DECEMBER, THE SCDG WAS NOTIFIED THAT THEY WOULD BE ENTERED INTO THE CHARITY REGISTER AS BEING FULLY REGISTERED WITH CHARITY STATUS, THIS WOULD ENABLE US TO APPLY FOR FUNDING UNRESTRICTED...
THIRD CASE OF DISABLED HATE MAIL REPORTED IN MILLOM
A third Disabled Hate Crime reported to the SCDG, the police and the Copeland MP Jamie Reed has been informed..
LANCASHIRE ROAD TOILETS STILL BEING FOUGHT FOR BY THE SCDG
The SCDG are still trying to persuade TESCO to adopt these public toilets after the CBC and Millom Town Council decided not to be involved any more, but the SCDG believe that Tesco could have been more encouraged to take them on by the CBC, it is a better idea to have toilets within range of the main shopping area, instead of having to travel to the park.
There is no proper safe parking at the park toilets, and if you are shopping or have finished shopping at Tesco, who wants to pack up the car, then travel to the park with a family in tow.
THE SCDG HAVE QUESTIONED THE COPELAND BOROUGH COUNCIL PROCEDURE OF NOT DOING A EQUALITY IMPACT ASSESSMENT AS THEY PROCLAIM IN THEIR
PROCEDURE,ON THE CBC WEBSITE, THIS IS TOO ASK HOW IT WILL AFFECT THE GENERAL PUBLIC, THE ELDERLY, THE DISABLED, MOTHER AND CHILDREN,CONSULTED WITH LOCAL GROUPS, THIS HAS NOT BEEN DONE...
THERE ARE MORE PUBLIC TOILETS CLOSING UP AND DOWN THE COUNTRY...IF YOU GO TO A STRANGE PLACE, WHERE DO YOU SPEND A PENNY, IF YOU ARE INCONTINENT, ON WATER TABLETS, POOR AT WALKING, IN A WHEELCHAIR....IMPORTANT IF YOU ARE A SUFFER OF THESE THINGS..
We are all Spartacus
It’s an unusual event for a report and the motivation for producing it to come directly from within the community for whom it
purports to speak. But, as Ian Macrae reports, such was the case in early January
The Prime Minister’s claim that “We’re all in this together” was given a new twist early in the new year when it was coupled with the Roman myth
of Spartacus, the slave whose identity was concealed when all rebellious slaves claimed that they were Spartacus.
The occasion was the publication of a report, under the name of Spartacus which was actually the work of a group of disabled people
working together to properly research, collate and publish the results of the Government’s consultation into its proposed reform of Disability
Living Allowance (DLA) and its replacement by PIP (Personal Independence Payment).
Requests for disclosure of the full responses to the consultation were made under the Freedom Of Information (FOI) Act.
In issuing her own response to the consultation, Minister for Disabled People, Maria Miller simply reaffirmed the Government’s intention to
plough on with the reform. She gave no indication as to the level of opposition expressed by the thousands of people who gave their views.
Apart from its startlingly revealing results, what set the Spartacus report aside was that it came from within the disabled community. It was
entirely researched, written and funded by disabled people and was subsequently supported by a range of individuals and organisations
acting as allies.
It was also remarkable in that, like recent international movements, its support was gathered, coordinated and communicated using social
networks such as Twitter.
One of the key activists involved with producing and propagating the report was Kaliya Franklin. Speaking a day after its launch, she told
Disability Now: “It was amazing. The Spartacus report trended pretty much all day on and off. At some points it was trending worldwide with
the international disabled community getting involved on a worldwide level.”
Among the celebrities who supported the launch were Stephen Fry and Alastair Campbell both of whom are active as bloggers and on Twitter. Ms
Franklin told us: “We had all kinds of celebrity support and endorsement.
“With Alastair Campbell it’s quite simple. He’s had his own mental health issues and is very involved with mental health work and he wanted
to do whatever he could as part of our community and using his influence.”
Among the things which the research unearthed which were published in the report was the opposition of the Mayor of London, Boris Johnson to
the Government’s welfare reform agenda. In its response to the consultation, the Mayor’s office said: “The Mayor would call for the
Government to retain the three-month qualifying period as the increase to six months will mean that people with fluctuating conditions have
increased difficulty meeting the qualifying period. People with fluctuating conditions face the same barriers that all disabled face in
relation to higher costs of living and DLA is essential to maintain a decent quality of life.”
Mayor Johnson was not alone in his opposition to this aspect of benefit reform. The report revealed that 98 per cent of those who responded to
the consultation objected to the extension of the qualifying period for PIP, the benefit which it’s proposed will replace DLA.
There were similarly high levels of objection, again with support from the London Mayor, to the proposal that DLA or its PIP replacement would
no longer bring with it automatic entitlement to other benefits.
90 per cent of respondents also opposed the introduction of a new type of assessment for entitlement to DLA/PIP. It’s generally feared that any
new process would prove to be as alienating and ineffective as the Work Capability Assessment currently being used to gauge people’s fitness
Apart from bringing these very high levels of public opposition to public notice – there was for instance, “overwhelming opposition” to the
idea of replacing DLA with PIP – the hopes of Kaliya Franklin and other disabled people who produced the report are that they will force a
pause of six months in the reform process for consideration and further more transparent consultation.
Posted by John Hargrave at 24 Jan 12 17:10
The Spartacus Report is an excellent piece of work from a dedicated team of disabled activists.
It just goes to show the lengths the government will go to, to conceal the true extent of feeling amongst the disabled community.
Surely the government is aware that changing from DLA to PIP's will cost them millions of pounds and it would be folly for them to proceed
further, what money they would save is paltry compared the amount they spend on the project.
The government stance has created a great deal of fear for many of us and now is the time to say 'enough is enough', and stuff the whole
issue into the bin.
They (the government)have far bigger fish to fry..how about reigning in those who don't pay, won't pay, their taxes.
DLA has the lowest rate of fraud (0.5%) than any other benefit, so who are they trying to kid?
NATWEST BANK IN ULVERSTON HAS INSTALLED A WHEELCHAIR ACCESSIBLE ENTRANCE
THE SCDG ARE PLEASED THAT FINALLY THE RBS HAS TAKEN OUR PLEA SERIOUSLY, AND PUT IN A RAMP FOR DISABLED USERS-------
BEFORE AFTER INSTALLING RAMP
Risk to rights from government cuts
It's often and easily dismissed as a toothless piece of international bureaucracy but Sunil Peck reports that a parliamentary
committee is using the UN Convention on disabled people's rights as a stick to beat the Govenment with
Government policies risk turning the clock back years on disability ights, according to the findings of a parliamentary inquiry.
Under the United Nations Convention on the Rights of Persons with Disabilities, politicians are obliged to ensure that a disabled person’s
right to live independently in the communityÂ is promoted.
But the year-long inquiry, conducted by the Joint Committee on Human Rights (JCHR), found that various new measures risk denying disabled
people the support they need for independent living. These measures include the restricting of eligibility for social care,
replacing of Disability Living Allowance with Personal Independence Payments and closing of the Independent Living Fund.
The JCHR has put forward recommendations that it says must be implemented to preserve independent living, including that due
consideration be given to the UN Convention when policies are developed,and that disabled people have greater involvement in drawing up
policies which will affect them.
The Convention is a UN treaty that promotes the human rights of disabled people. The Government ratified it in 2009.
Dr Hywel Francis, the Labour MP who chairs the committee, said: “We are concerned to learn that the rights of disabled people to independent
living may be at risk through the cumulative impact of current reforms. Even though the Convention was ratified by the UK with cross-party
support in 2009, the Government is unable to show that sufficient regard has been paid to the Convention in the development of policy with
direct relevance to the lives of disabled people. “The right to independent living in UK law may need to be strengthened
further, and we call on the Government and other interested organisations to consider the need for a free-standing right to
independent living in UK law.”Baroness Jane Campbell, at whose behest the inquiry was undertaken, said
that the recommendation to incorporate the right to independent living into UK law was the most important put forward by the committee.
She warned that without it, disabled people could find themselves shut up in residential care homes.
“What I want disabled people to do between now and 2014, when the UN committee reports on the Government’s progress in implementing the
Convention, is inform and lobby the committee so that they ask the Government the right questions, at the same time as using our
recommendations in every government consultation.”
Given the Government’s record of cutting the support and services that disabled people rely on, there are questions about the realism of
expecting the parliamentary committee’s inquiry to make a difference.
Baroness Campbell is cautiously optimistic. “Hopefully it will re-ignite disabled peoples’ confidence and belief in the fundamental right to an
independent life and the fact that the Government can’t write us off as too economically expensive. “The cost of not doing anything risks putting disabled people in a
position of dependency that costs the Government more, long-term, and does nothing for the public morale of those who give and receive care.”
There’s also a perception that for all its rhetoric about advancing equality, the UN Convention lacks clout. But Baroness Campbell insists
that it does have substance.“It’s an amazing international tool. There’s an international committee
to make sure that signatory countries carry out their obligations. The UN Convention on the Rights of Persons with Disabilities contains what
we have been fighting for during the last 50 years. If we don’t give it energy, it will amount to nothing. But if we do, it’s got a structure by
which we can regain our human rights.
“We’ve seen with the Welfare Reform Bill that legislation can be repealed on a whim. You can’t do that with the Convention.”
The Government had not responded to a request for an interview when Disability Now went to press, but a spokeswoman said that it would do so
“in due course”.
Thousands of disabled people to lose vital benefit
30 April 2012
From 1 May, thousands of disabled people claiming Employment and Support Allowance (ESA) - a benefit for those unable to work due to
illness or disability - will lose their benefit as a one-year time limit comes into force. This will see people who have been classed as "unfit
for work" by the Government lose out on up to £99.15 per week.
Shaun Williams, Director of Corporate Affairs at Leonard Cheshire Disability, said: "ESA is only paid to people who have
been assessed by an independent medical professional as unable to work due to ill health or disability. It is completely unjust to put a time
limit on this support for disabled people, many of whom want to work but are unable to do so.
"We are deeply concerned about the impact that time limiting will have on disabled people. Thousands of people will struggle to find a job
within this time frame - the Department for Work and Pension's own research suggests that of those on ESA and in the Work Related Activity
Group, 77% will take longer than a year to find work.
"Over the next three years, as many as 700,000 people could be adversely affected by limiting contributory ESA. Disabled people are already
twice as likely to live in poverty as non-disabled people. Taking away this vital support runs the risk of pushing even more people into
poverty and debt."
From 1 May, the government will impose a one-year time limit for people in the Work Related Activity Group of Employment and Support Allowance
(ESA) to receive their benefit.  This is despite the fact that the government’s own statistics suggest that 77% of those people on ESA and in the Work Related Activity Group will take longer than a year to find work.
This change will affect disabled people who receive ESA based on their national insurance contributions and who have been placed in the Work
Related Activity Group of ESA (as opposed to the Support Group). It will mean that from 1 May, those who made their claim in April 2011
or earlier will lose up to £99.15 per week. Those who made their claim after this date will lose the same amount when their one-year time limit
comes to an end.
The time limit applies from the start of an individual's claim. This means that it includes the 13-week assessment phase for ESA, where the
benefit is paid at a lower rate.
People will still be able to apply for income-related ESA after their contributory ESA claim ends, but if a claimant’s partner is earning as
little as £139.60 per week, or working 24 hours or more per week, claimants will no longer be eligible for ESA. This figure is the total a
couple on benefits could get if one partner is eligible for the Work
Related Activity Group of ESA but receive no other premiums.In total, government estimates suggest that 700,000 people will see
their benefit ended - 200,000 people in 2012/13. Some will be entitled to other support but 280,000 will lose their benefit altogether.
For further information, please contact Natalia Kannas in Leonard
Cheshire Disability's press office on 020 3242 0389 (out of hours 07903 949 388) or email natalia.kannas@LCDisability.org.
MILLOM BUS SERVICE 19/05/2012
Sorry for the delay in getting back to you about the replacement Millom Town Service.
We got clearance today to award a replacement contract which (subject to operator agreement) will start
from Monday 28th May, to ensure no break in service.
Most of the timetable will be the same as currently provided, but it is likely (again subject to agreement
with the operator) that there will be an enhanced service to Haverigg,replacing some poorly used journeys to South Millom, after requests from passengers
when our route monitor travelled of the service.
More information once I have it next week.
Scheduled Bus Services Officer | Integrated Transport
Environment | Cumbria County Council
18 Portland Square | CARLISLE | CA1 1PE
t : 01228 226004
f : 01228 226016 < New number
e : email@example.com
Members of the SCDG doing access audit on hodbarrow nature reserve recently
GARY TESTING ACCESS FOR WHEELCHAIR NOEL MOORE....GARY JACKSON,,,CHRISTINE REDGATE
|| THERE ARE GOING TO BE CHANGES IN THE WELFARE BENEFITS APRIL 2013
IF YOU ARE INTERESTED, EITHER TELEPHONE THE FOLLOWING NUMBER 01229 773341 AND YOU CAN COLLECT A COPY, OR HAVE ONE POSTED, OR YOU CAN E-MAIL.... firstname.lastname@example.org.................. AND I CAN FORWARD A COPY
Atos assessors told to keep disability benefit
approvals low, film suggests
GP applied for job with Atos assessing whether benefit applicantswere fit for work, and
secretly filmed his training
The Guardian, Friday
27 July 2012
If someone can sit and propel a manual wheelchair, they are not eligible for the benefit, one trainer in the films explains. Photograph: Rex
Features Secret filming of training given to doctors recruited by the private company Atos to assess whether sickness and disability benefit applicants are fit for work
suggests that staff are monitored to ensure they do not find excessive numbers of claimants eligible.
The footage will trigger a new debate over whether there are fixed targets for the number of people who should be granted the new incapacity
benefit – the employment and support allowance – something the government and Atos, the company hired by the Department for Work and Pensions (DWP) to
conduct the fitness for work tests, have consistently denied.
The film also demonstrates the unease about the radically heightened eligibility criteria felt by some trainers employed by Atos to teach
new recruits how to carry out the tests. It is now harder for some very severely disabled claimants to qualify for support. No matter how serious
claimants problems are with their arms, for example, "as long as you've got one finger, and you can press a button," they would be found fit for
work, a trainer explains.
Dr Steve Bick, a GP with 20 years' experience, applied for a job as an assessor with Atos to carry out the work capability assessment (WCA), and
secretly filmed his training for Channel 4's Dispatches programme, which will be broadcast on Monday 30 July at 8pm. Undercover filming shows Bick being told
by his trainer that he will be watched carefully over the number of applicants he found eligible for the highest rate of disability payments.
The trainer tells trainee assessors: "If it's more than I think 12% or 13%, you will be fed back 'your rate is too high.'" When Bick
questioned how the company could know in advance the precise proportion of people who needed to be put in this category, the trainer replied: "How do
we know? I don't know who set the criteria but that's what we are being told."
Bick asked: "So if we put 20% in, we would get picked up on?". He was told by the trainer that, in that scenario, his cases would
be reviewed. The DWP said it was unable to respond in detail to the programme's findings because it had not been shown a full transcript, but a
spokeswoman said it was "nonsense" to suggest there were targets or expected results of any sort. She said assessors' results were monitored to
make sure they adhered to an average, adding: "If individual Atos healthcare professionals record results considerably outside the average, their
work may be audited to ensure quality. If no issues are found with the quality of work, no action is taken."
In the footage, one of the trainers admits during a session that the auditing process makes her feel uncomfortable.
"It's terrible sometimes, people having [problems with both hips and both knees, but good hands. Terrible. And you know, we talk about
modern work adaptations, but we know how it looks from the other side – there's no jobs for normal people, healthy people. But we have to think this way and
sometimes you feel awful because you can't do anything for people. You can't feel sorry and give them the money just because you feel sorry for
them ... you will go on targeted audit," she says.During the assessment, Atos health professionals, who can be
doctors, nurses or physiotherapists, have to award claimants points reflecting the apparent severity of their condition, with information gathered through a
computer-led set of questions. The data is typed into a computer program during the 20-minute session, and patients who score 15 points are likely to be found
eligible for support, although the final decision is taken by jobcentre staff.Patients who score below 15 points are not likely to qualify for benefits.
In the film, the trainer highlights to new trainees the way that the new system has been altered so it offers less support to certain categories
"For employment support allowance, we talk about mobilising, which means being able to transfer from point A to point B either
by walking, walking with aids, which is crutches, walking sticks, Zimmer frame or using a manual wheelchair. So if someone has no legs but they have good
hands, they can sit and propel a manual wheelchair, they don't score anything.This is one of the toughest changes," she says. "I've recently had
somebody with prostate cancer, but of course that's not traditionally treated with chemotherapy so I gave him no points. And I couldn't do anything
else…. Same with breast cancer: the hormonal treatments don't count. So he was given no points, I felt very uncomfortable doing it and I didn't like doing it,
but I had no way of scoring him."
Large numbers of people found ineligible for the benefit are appealing against the decision to find them fit for work; about 41% of those
refused support go to tribunal and 30% are subsequently granted the benefit.There have been more than 600,000 appeals since the WCA started, costing about
£60m a year.
The film also reveals Atos's lack of accountability for these appeals. The trainer explains: "Good thing for us is, even if you made the
wrong decision … you never go to the tribunal. So, sort of, you won't be blamed."
An Atos Healthcare spokesperson said: "It is simply and absolutely untrue that there are targets for the number of people to be
assessed as fit-to-work; neither set by the Department for Work and Pensions nor Atos Healthcare. Every person we see is assessed individually with a focus
on the facts of their own case."
On Thursday, the high court granted permission to two disabled people to bring a claim for judicial review against the work and pensions
secretary to challenge the operation of the WCA, on the grounds that it potentially discriminates against claimants with mental health problems.
Atos assessors told to keep disability benefit approvals low, film suggests GP applied for job with Atos assessing whether benefit applicantswere fit for work, and
secretly filmed his training
WHY DOES THE GOVERNMENT SPOKESPEOPLE THINK WE ARE STUPID
TAXI`S CHARGING EXTRA FARE FOR PEOPLE WITH WHEELCHAIRS
IT HAS BEEN BROUGHT TO OUR ATTENTION THAT SOME TAXI DRIVERS IN BARROW ARE CHARGING EXTRA FOR DISABLED PERSONS WITH A WHEELCHAIR BY 50%...
THIS BOTH ILLEGAL AND DISCRIMINATING
UNLESS IT IS A PRIVATE HIRE TAXI(The ones you book by phone)
IF THIS SHOULD HAPPEN TO YOU, PLEASE RECORD THE TAXI FIRM, LICENCE NUMBER AND REPORT TO EITHER US ON 01229773341 OR TO BARROW DISTRICT DISABILITY
ASSOCIATION 01229 432599
YOU COULD AVOID THESE FIRMS??????
WE CANNOT REPORT THESE INCIDENTS UNLESS YOU REPORT THEM TO US WITH DETAILS
BAG PACKING FOR FOUR HOURS IN MILLOM TESCO SUPERMARKET
ON SATURDAY 1ST SEPTEMBER THE SCDG HELD A BAG-PACK EVENT FOR 4 HOURS IN MILLOM TESCO, WE WOULD LIKE TO EXPRESS OUR THANKS TO THE TESCO STAFF WHO REALLY LOOKED AFTER US AND FOR ALLOWING US TO CARRY OUT THE EVENT, BUT A SPECIAL BIG THANK YOU TO THE GREAT MILLOM COMMUNITY, WHO LIVED UP TO THE REPUTATION THAT IS LINKED WITH MILLOM PEOPLE, THAT IS THEIR GENEROSITY
WE RAISED THE GRAND SUM OF.. £505.87
BIG THANK YOU TO ALL INVOLVED
Woman records victory over Atos
A disabled woman who waged an online campaign to challenge Atos’s refusal to record her Work Capability Assessment (WCA) says she hopes
her small victory encourages people undergoing the test to assert their rights.
Jayne Linney, whose condition causes pain in her joints and muscle spasms, was a community worker before she gave up work in 2010.
Ms Linney said that it was important that her WCA was recorded because she had experienced three assessments where the reports had contained
wrong information about her condition and which had even got her name wrong.“It was so disheartening to have to challenge all this, and didn’t
inspire any confidence in the fairness of the system either.”
After several requests to record her fourth assessment, Ms Linney was told that her assessment could not be recorded because all the machines
were broken.“I decided to start my website petition out of indignation because I knew that the WCA could be recorded, Chris Grayling was saying it could –
so how dare Atos say that it couldn’t. I wanted it challenged publicly.”
Atos relented after Ms Linney’s campaign attracted messages of support from thousands of disabled people.“When I heard that they’d back down, I felt elated and like a huge weight had been lifted off my shoulders.”
She added: “The fact that my assessment was recorded made a huge difference. The doctor was polite and I wasn’t asked to stand up or
balance which they usually ask you to do, even when you say you can’t.”
Ms Linney said that her successful challenge against Atos had been empowering and she urged other disabled people to follow her example if
they found themselves in a similar situation.
“I hope that my victory will give people belief. At least three people who have contacted me to say that because I had challenged Atos’s
refusal to record my WCA, they would too.”
Kaliya Franklin, who has successfully made use of the internet and social media as tools to campaign against the Government’s welfare
reforms, welcomed Ms Linney’s victory over Atos.
“Ms Linney’s campaign proves that with determination and persistence disabled people can make a difference to an unjust system. Whilst it
seems unlikely that we will see the back of either Atos or the WCA, Jayne’s efforts just go to show that improvements can be made to the
current system by speaking out and criticising in a constructive manner.
Social media allows us the opportunity to make both criticism and constructive suggestions, and is something the private sector
particularly understand can make or break their reputation.
USE THE POWER YOU HAVE FOR A FAIR ASSESSMENT...
A CHANGE IN A NAME DOES MAKE A DIFFERENCE
In considering the Government's proposed move from DLA to PIP, Ruth Patrick finds there's more than meets the eye to a change of name
In one of his most famous and best-remembered quotations, Shakespeare has Juliet ask: “What’s in a name? That which we call a rose by any
other name would smell as sweet.”
Juliet is understandably fed up that her developing romance with Romeo is being frustrated by their surnames and the family animosity between
the Montague and Capulet clans. If only he had been a Smith perhaps their love would have still blossomed, but without all the tragedy and
drama! While I take Juliet’s point, arguably the names and language we appropriate really do make a difference. Certainly, this is the case in
the political arena where the words used often have heightened meaning and reflect underlying assumptions about what is and what should be in
This seems to be the viewpoint of Baroness [Jane] Campbell who is considering how best to challenge the Government’s plans to change the
name of Disability Living Allowance (DLA).
From 2013, DLA is to be reincarnated (and substantially reformed) under the new tagline – Personal Independence Payments (PIPs). Baroness
Campbell feels this will detract from the original purpose of DLA. “I am concerned by the new title chosen to replace Disability Living
Allowance because the original title sums up the principle behind the payment. It is for the extra costs of “living” with a disability (hence
Disability Living Allowance) and once awarded is left to the disabled person to decide how to spend it most effectively. Personal Independence
Payments does not encapsulate this clear principle, therefore changing the entitlement’s intent. Personal Independence Payment is too similar
to the term personal budgets or personalisation, which does not have the same intention and is heavily associated with social care”.
Baroness Campbell is concerned that it also represents part of a broader move away from recognising and responding to the extra costs associated
with disability. Arguably, though, the changing language is about something else too. The coalition Government, like New Labour before it,
repeatedly praises and fetishises independence which it associates with the behaviour of the hard working majority struggling to make ends
meet. Their supposed “independence” is contrasted with the passive “dependence” of people on benefits who are stigmatised, undermined and
demeaned. Seen against this context, the movement to PIPs is yet another example of the Government’s promotion of independence and related
denigration of dependency.
While the Disabled People’s Movement has long made the call for true independence a central part of its campaigning efforts, there is perhaps
also mileage in challenging and collapsing these unsustainable and politically motivated divisions between independence and dependence.
Rather than accept the assumption that all workers are independent and non-workers dependent, we should instead explore the fundamental
dependency of all upon all. The reality of human interdependency as a basic part of the human condition should be laid bare, as should the
truth that many (if not all of us) are “dependent” on aspects of the welfare state for fulfilling some of our most basic needs. While I may
be in full-time employment, I’m not independent – I rely on the NHS, on the local council and soon on Child Benefit to support me and my family.
Looking deeper, I am “dependent” on a network of family, friends and colleagues to support me through life.
Perhaps by starting to talk more positively about dependency – both on the state and on each other – we might also start to challenge the
Government’s continued demonization of welfare “dependence”. Juliet may have felt that names shouldn’t matter. But, as she discovered to her
cost, they can and do matter a great deal.
Claiming back wrongly charged care costs
Date: 27 July 2012
If you have a relative who is having to pay for their care, they may be charged for care that they should have been getting for free. This includes the costs of care home fees or care they are getting in their own home. It can include fees for any type of care home, whether it's a residential or a nursing home.When people start to need care, or have to go into a care home, they are often assessed by social services. The care they receive is then means-tested. This means many people are told they have to pay for their care, often having to sell their homes to afford the care home fees.
However, if your relative needs care because of their serious physical or mental health needs, they should be assessed for NHS continuing care.
If they are found to need NHS continuing care, this must be provided free of charge, including a free place in a care home or a free package of care. Many people are not aware of this and don't ask for the correct assessment to be carried out.
How to claim back care home fees or other care costs If you believe that your relative should have been assessed for NHS continuing care but was not, you can
ask their local Primary Care Trust (PCT) to carry out a retrospective assessment. This means asking for an assessment going back in time to when they started to need care.
In some cases, you can ask for an assessment going back to when their condition got worse, because they would have had greater care needs. You can ask for a retrospective assessment even if the person who needed care has since died.
When do you have to claim by?
There are deadlines for making a claim for a retrospective assessment. These are based on the period of care:
for care received between 1 April 2004 and 31 March 2011, the deadline is 30 September 2012for the care received since 1 April 2011, the deadline is 31 March 2013.
You can’t normally ask for an assessment for care received before 1 April 2004.Can you make a claim yourself?
You may have been approached by a claims management company who offered to claim back care home fees on your behalf. If you do use a solicitor or a claims management company, you should be aware that although they may take your case on a 'no win, no fee' basis, they are likely to take a cut of about 25% of any care costs you get back.
However, you don't need to use their services - you can make a claim yourself and for free. Where to get more information and advice
To find out more about NHS continuing care and how to claim back care costs, go to the Age UK website at: www.ageuk.org.uk.
You can also find very useful
information about how to ask for an NHS continuing care assessment, including how to find out if one was ever carried out, on the
Alzheimer's Society website. They also have a template letter you can use. This information will help you understand the process you
need to go through. The information about this is suitable for people with all health conditions, not just Alzheimer's or dementia.
To find out more about how to get NHS continuing care and how to reclaim care costs, go to the Alzheimer's Society website
If you need more help, you can get advice from your local citizens advice bureau.
Blind man's Tasering and the bigger questions..????
Police error undermines our confidence, says Ian Macrae.
Back in the early 1970s, a story out of Northern Ireland made a big impression on me.It concerned a profoundly deaf man who was ordered to stop by soldiers. He
didn't hear the command and was subsequently shot dead.
This came back to mind this week when I heard the story of Colin Farmer from Chorley in Lancashire.
On his way to meet friends at a pub, Mr Farmer was also ordered to stop, in his case by police officers. He thought that the shouts came from "thugs" who
meant him harm.
His mistake has rather more credibility than the one made by the police who shouted at him apparently believing that his white stick was a samurai sword.
He was subsequently Tasered and, still believing that he was the victim of an attack,he was jumped on and pinned to the ground by his police pursuers.
We've been told that the greater visibility given to disabled people over the summer - not just paralympians but others of us who appeared on the broadcast media -
would lead to greater understanding and wider public education about disability. Mr Farmer's experience knocks a considerably large sized hole in
It's easy to imagine the ribbing the officer who used the Taser might receive from colleagues. He should also expect to have to undergo investigation for this
error which might have cost Mr Farmer his life and which will almost certainly have long-term traumatising effects.
But it also raises serious questions about awareness of disability and disabled people among the police. If a white stick can be mistaken for a samurai sword, what
confidence can we as a community have in law enforcement agencies?
With levels of hate crime against disabled people reportedly on the rise, can victims feel that they will get an appropriate response from the bobby on the
front desk or out on the street if they report an incident?
Can we be sure that officers are equipped to challenge their own assumptions and prejudices?
How, for instance, might a person with learning difficulties feel that they will be taken seriously and given credibility when reporting a hate crime incident?
Over-arching all of this is the bigger question of what is done within police forces to a Blind man's Tasering and
the bigger questions
REMEMBERANCE SUNDAY LAYING OF OUR WREATH
On Sunday the 11th November, Brian Crawford laying the SCDG poppy wreath. Secretary at Cenotaph
MILLOM CHRISTMAS FESTIVAL HELD SATURDAY 8TH DECEMBER 2012
THE SCDG HAD IT`S RAFFLE STALL ONCE AGAIN IN THE CHRISTMAS FESTIVAL, AND THANKS TO ALL WHO HELPED ON THE DAY (INCLUDING A EMPLOYEE OF GHLLY SCAUR QUARRIES
WHO WAS PROVED ON THE "PUTTING SOMETHING BACK INTO THE COMMUNITY"
WE WOULD LIKE TO THANK MR ANDREW GRAY FOR HIS GENEROUS HELP
TO THOSE WHO DONATED PRIZES, BOUGHT RAFFLE TICKETS.....THANK YOU VERY MUCH
WE MADE £240-00 FOR THE FUNDS
Disability benefit changes 'should be reconsidered'
The ability to walk more than 20m is one criteria for the higher mobility rate of PIP
Welfare change timetable extended
Thousands of disabled people could lose some benefits because of last-minute changes to the new system of Personal Independence Payments,
The group, We Are Spartacus, said tougher rules to assess how far people can walk mean many claimants will lose help with transport from April.
Under the rules,those unable to walk more than 20m would qualify, rather than the previous distance of 50m.
Ministers said the benefit will be targeted at those who need it most.Baroness Tanni Grey-Thompson, a crossbench peer and member of the
all-party parliamentary disability group, said the government needed to "think again".
About 3.2 million people receive Disability Living Allowance (DLA), a payment of between £20.55 and £131.50 a week to assist them in leading
The Department of Work and Pensions maintains it is making an out-dated benefit much clearer. And that broadly the same number of people will be
entitled to extra mobility help.The government hopes to save £2bn as a result of the switch from DLA to PIPs.
'Ghettoised and excluded'
We Are Spartacus, an online campaign group about disabled people's views on the welfare system, analysed figures from the Department for Work and
Pensions and Motability, the organisation that supplies lease cars and specialist converted vehicles to disabled people claiming the highest mobility
rate of Disability Living Allowance.
With an estimated 428,000 fewer working-age disabled people would qualifying for the higher PIP rate by 2018, report co-author Jane Young said:
"This not only condemns thousands more disabled people to the worry of losing out under the new benefit and the isolation this will bring. It also
highlights the lie that the government's reforms are targeted to support those in need."
This will really radically changes how disabled people are able to integrate into society”
Baroness Tanni Grey-ThompsonFormer Paralympian
She said that of the 173 consultation responses from organisations on the new PIP "only one suggested the qualifying distance for those who have
the most difficulty getting around should be changed."
Baroness Grey-Thompson said at her local supermarket she could not get from a blue badge parking space to the doors - 20m is not that far, she said.
The former Paralympian said she had a "real fear" that disabled people would be "ghettoised and excluded from society",
under the new rules."I'd really like the government to think again. Not just about changing the distance but about actually what the regulations say to ensure
that disabled people are really protected," she told BBC Breakfast.
"It could be that over 400,000 disabled people won't get support -and that means they won't get help with transport, maybe getting their children
to school or to getting work, and this really radically changes how disabled people are able to integrate into society."
Baroness Grey-Thompson said there would many appeals in response to the move, which would "clog up the system".
"Appeals cost far more than actually just giving disabled people the benefit in the first place," she said
.Fewer qualifying people would mean 160,000 fewer Motability cars on the road, the analysis suggested, which in other research has been linked to economic losses such as fewer jobs in the Motability-related industries, and
lower GDP contributions.
Ms Young said: "Disabled people will be less independent, less likely to be able to get or keep a job, more likely to give up self-employment
and less able to care for their children or support other family members."
‘HELP GIVE OUR DAUGHTER A CHANCE TO PLAY OUTSIDE’ - MILLOM PARENTS
Last updated at 16:38, Thursday, 24 January 2013
MILLOM mum Lisa Penrith is hoping the community will support her family’s bid to give her disabled daughter a place to play outdoors.
: Two-year-old Natasha was born with E.coli, septicaemia and meningitis. Bleeding and fluid on the brain resulted in brain damage and she was later diagnosed with cerebral palsy.Her parents are waiting to discover if she will ever learn to walk and talk properly.In the meantime, they are raising money for sensory toys and a safe outdoor play area at their Grammerscroft home.Mrs Penrith said: “The sensory equipment seems to really stimulate her. She’s like a different child when she’s at the sensory room at Millom Children’s Centre. She seems to come to life.“It’s been a learning curve since she was born. We’re still learning, week by week, day by day.”Natasha and her twin sister Shania were born five weeks early at Furness General Hospital in Barrow and both were treated in the Special Care Baby Unit, before Natasha was moved to the neonatal unit at Royal Preston Hospital.Mrs Penrith said: “When Natasha was born, she wasn’t breathing. It took 18 minutes for them to get her to start breathing on her own.“They worked for 11 hours to stabilise her before she was taken to Preston. The staff at FGH were absolutely brilliant. They stayed with her the whole time.”Natasha spent four weeks in Preston before she was allowed to go home.At one point the Penriths were having to balance their time between Natasha in Preston, Shania, who was still in the Special Care Baby Unit at FGH, and their three other children, Siobhan, James and Connor, who were at home.Natasha is diplegic, meaning she has a weakness in her lower limbs.The Penriths are holding a stork sale and coffee morning on February 24 at Millom Guide Hall, off St George’s Road, from 2pm to 4pm.Ten per cent of whatever they raise will be donated to the Special Care Baby Unit at FGH, with Mrs Penrith adding: “Without them we wouldn’t have Natasha”.‘HELP GIVE OUR DAUGHTER A CHANCE TO PLAY OUTSIDE’ -
PRESENTATION OF SPECIAL TRIKE TO NATASHA PENRITH
GARY JACKSON (CHAIR SCDG) WILLIE REID (SSC) ROCKY MOORE (SEC SCDG) NATASHA & DAD
31 January 2013 – PIP assessment guidance to be further strengthened in law
How someone carries out a range of activities will be considered when their eligibility for the Personal Independence Payment (PIP) is assessed, under law, Esther McVey, Minister for Disabled People, confirmed today.The proposed addition to the regulations now means that legally individuals will be assessed on what they can do safely, reliably, repeatedly and in a reasonable time period.Following a consultation on the regulations, it was suggested some of the criteria claimants needed to meet was unclear and didn't take into account fluctuating conditions. These amendments seek to address this.Minister for Disabled People, Esther McVey said:"Our intention has always been the same - we want to target support at those who need it most. We have always said that we will not just look at whether individuals can carry out activities but also the manner in which they do so."I know that disabled people and their representatives feel strongly that this important concept is set out in law and I am happy to do this."The addition to the regulations formalises the current wording included in draft PIP guidance.A draft amending regulation has been published today. A final Regulation will be laid once the PIP regulations currently being considered by Parliament are made but before they come into force in April.31 January 2013 – PIP assessment guidance to be further strengthened in lawHow someone carries out a range of activities will be considered when their eligibility for the Personal Independence Payment (PIP) is assessed, under law, Esther McVey, Minister for Disabled People, confirmed today.The proposed addition to the regulations now means that legally individuals will be assessed on what they can do safely, reliably, repeatedly and in a reasonable time period.Following a consultation on the regulations, it was suggested some of the criteria claimants needed to meet was unclear and didn't take into account fluctuating conditions. These amendments seek to address this.Minister for Disabled People, Esther McVey said:"Our intention has always been the same - we want to target support at those who need it most. We have always said that we will not just look at whether individuals can carry out activities but also the manner in which they do so."I know that disabled people and their representatives feel strongly that this important concept is set out in law and I am happy to do this."The addition to the regulations formalises the current wording included in draft PIP guidance.A draft amending regulation has been published today. A final Regulation will be laid once the PIP regulations currently being considered by Parliament are made but before they come into force in April.31 January 2013 – PIP assessment guidance to be further strengthened in lawHow someone carries out a range of activities will be considered when their eligibility for the Personal Independence Payment (PIP) is assessed, under law, Esther McVey, Minister for Disabled People, confirmed today.The proposed addition to the regulations now means that legally individuals will be assessed on what they can do safely, reliably, repeatedly and in a reasonable time period.Following a consultation on the regulations, it was suggested some of the criteria claimants needed to meet was unclear and didn't take into account fluctuating conditions. These amendments seek to address this.Minister for Disabled People, Esther McVey said:"Our intention has always been the same - we want to target support at those who need it most. We have always said that we will not just look at whether individuals can carry out activities but also the manner in which they do so."I know that disabled people and their representatives feel strongly that this important concept is set out in law and I am happy to do this."The addition to the regulations formalises the current wording included in draft PIP guidance.A draft amending regulation has been published today. A final Regulation will be laid once the PIP regulations currently being considered by Parliament are made but before they come into force in April.
Call to arms – challenging PIP regulations
Please note: our lawyers have informed us that they have a sufficient number of candidates to take part in the legal challenge and are therefore no longer
looking for anyone else. However, if the case is successful, all those who may be affected by the reduction of the walking distance criteria from 50m to 20m
On Tuesday 5 February, the Social Security (Personal Independence Payment) Regulations 2013 were passed by the House of
Commons Eleventh Delegated Legislation Committee (audio recording). The debate, transcribed at http://www.publications.parliament.uk/pa/cm201213/cmgeneral/deleg11/130205/130205s01.htm, lasted
just a little over an hour, very few members of the committee contributed and all voted along party lines. And that was it. Regulations which determine the
independence and well-being of almost 2 million disabled people were dealt with quickly and quietly, like some routine to be got out of the way.
But this is NOT routine for disabled people. Across the length and breadth of the UK disabled people’s lives will change immeasurably as a result of the vote this
afternoon. Many will find the long term support provided by Disability Living Allowance stripped away by the application of a rigid and limited set of
activities and descriptors. In particular, people with mobility impairments who can walk more than 20 metres but not more than about 50 metres may lose their
vital Motability vehicle (or other independent mobility solution funded by their higher rate mobility component DLA) and, with it, their independence.
But the fight is not yet completely lost. Our lawyers (Leigh Day solicitors and human rights barristers fromDoughty Street Chambers) advise that this lowering of
the distance criteria from 50 metres to 20 metres could be unlawful and are considering how we can challenge the regulations. But to do so, of course, we
need claimants whose circumstances make them suitable candidates to participate in such a challenge. For the best prospect of success, the barristers have set
the following criteria (some essential, some desirable):
These are the essential attributes of a suitable claimant for judicial review of the 20-metre walking distance criteria for enhanced mobility component of PIP:
Eligible for legal aid – check your eligibility at http://legalaidcalculator.justice.gov.uk
Currently have a DLA award including Higher Rate Mobility component
DLA award NOT due to expire until after October 2013
On re-assessment under PIP, whenever that occurs, is at risk of losing out on the enhanced mobility component of PIP because they can walk over 20 metres or so
but cannot walk up to 50 metres. This probably means their mobility is stable – either until the expiry date of their current award (if it is time
limited), or until at least 2015 (if their current award is indefinite).
Does NOT have any difficulty planning or following a journey (eg due to mental health, cognitive or sensory impairment)
These additional criteria are desirable (but NOT essential) attributes of a suitable claimant:
DLA award expires/due for renewal soon after October 2013
Has a car or wheelchair accessible vehicle under the Motability scheme
Has some evidence of the basis on which they were awarded DLA, eg a Tribunal Statement of Reasons, a DWP award letter referring to 50 metres (the figure is in the
standard letters), or medical evidence
If you think you satisfy at least the essential criteria…
There’s no time to lose… please share this post everywhere so we have the best chance of challenging the PIP regulations. Thanks!Call to arms – challenging PIP regulations
[ BEDROOM TAX] IF YOUR SMALL BEDROOM IS 70SQ FT OR UNDER IT IS CLASSED AS
A BOXROOM THERE FOR CAN NOT BE CHARGED BEDROOM TAX , THIS IS LISTED UNDER
THE HOUSING ACT 1985 SECTION 326 , PLEASE USE THIS DO NOT TAKE ANY EXCUSES
FROM THE COUNCIL AS THE HOUSING ACT 1985 CAN NOT BE CHANGED BY LAW .
PLEASE MEASURE YOUR ROOM AND PUT YOUR FOOT DOWN AS THEY HAVEN'T A LEG TO STAND
ON , I PUT THIS TO THEM TODAY AND I AM RIGHT - copied from Social Welfare
BIG DEBATE...TORY COUNCILLOR AND THE SCDG
THE S.C.D.G. WOULD LIKE TO WELCOME A NEW GROUP " MILLOM PARENTS & CARERS DISABILITY GROUP"
WHO WILL CATER FOR THE 0-20 YEARS MEMBERS OF THE COMMUNITY, WHO WISH TO PARTICIPATE IN ORGANISED
SPORTY TYPE EVENTS...
tHEY ARE RUNNING UNDER OUR UMBRELLA, BUT RUN AND FINANCE THEMSELVES, THEY HOPEFULLY HOPE TO GET THEIR OWN
CONSTITUTION AND REGISTRATION IN THE FUTURE..
IN THE LISDOONIE HOTEL BARROW, WEDNESDAY 4TH DECEMBER 2013 WAS B.A.E. SYSTEMS (GIVE AS YOU EARN) AWARD PRESENTATION,WE WERE PRESENTED WITH A CHEQUE FOR £750.00 TO HELP WITH OUR RUNNING EXPENSES
WE WILL BE BANKING THIS A.S.A.P.THE AFTERNOON WAS FINISHED OFF WITH "PIE & PEA" DINNER..
THE LATE GARY JACKSON
It is with a sadden heart I am writing this to say our Chair Gary Jackson passed away on Sunday 2nd Feb 2014
He was a great asset to the group, and he played a major part in some of our biggest campaigns.
We will all miss him, and pleased that the suffering has now stopped, he fought a good fight against cancer.
SWING FOR CHILDREN WITH LEARNING DIFFICULTIES
The Millom Parents and Carers Disability Children`s group wanted a special swing so the disabled children could
enjoy the park that much better, inquires were made by SCDG and it was found that we could get one, but it would cost £6,600
A grant was applied for to THE BIG LOTTERY... they have awarded us £5,000, we then applied to THE
CHARLIE AND KATHIEEN DUNNERY CHILDREN`S FUND they straight away granted us the shortfall of £1,600
so work can begin soon on the manufactoring and erection of the swing in MILLOM PARK
MTC Agreed at a meeting, they would purchase the swing, through our grant award, saving us paying VAT.this should be up and running September
MEMORIAL SEAT DEDICATED BY:- SOUTH COPELAND DISABILITY GROUP;;;;COPELAND DISABILITY FORUM;;;;ALLERDALE DISABILITY ASSOCIATION.
ON FRIDAY 14TH NOVEMBER THE MAYOR OF MILLOM Felicity Wilson unveiled the bench on haverigg foreshore
RUTH PETER NOEL MOORE MAUREEN JACKSON MAYOR FELICITY WILSON ALAN GRACE
WORDING OF THE PLAQUE
MAUREEN JACKSON (GARY`S WIFE)
SKY CUSTOMER DISABILITY HELP SERVICE
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They can be contacted using the following methods:Live Chat – please use the dialogue box on the right hand side of the page to chat online with a member of the Accessible Customer Service teamOnline form: help request formTelephone: 0344 241 0333 (Republic of Ireland: 0818 71 98 09)British Sign Language via an interpreter: BSL LiveEmail: email@example.comFind out more about textphones or Next Generation Text servicesTextPhone: 0344 241 0535 (Republic of Ireland: 0818 71 98 49)By selecting SignVideo BSL Live you can use your webcam to speak with a member of the Accessible Customer Service team in British Sign Language via an interpreter. For more information, please read the instructions after following the link.We can also provide printed material in alternative formats (Braille, Large Print and Audio CD). For more information, please visit the alternative formats section.Please note that the Accessible Customer Service team is only equipped to respond to queries from customers with disabilities. All non-accessibility related enquiries should be directed to the Sky Help Centre.
Natasha Penrith with the Sensory Unit
Mrs Narongchai (Headteacher) Lisa & Jake Penrith Noel Moore SCDG
Noel Moore SCDG handing the Unit over to Mrs Narongchia (Haverigg Primary School) watched by Lisa & Jake Penrith
MARATHON BAG PACK FOR FLOOD APPEAL
SOUTH COPELAND DISABILITY GROUP/MILLOM PARENTS & CARERS DISABILITY GROUP
WILL ORGANISE A BAG-PACK ON SATURDAY 16TH JANUARY 2016 MILLOM TESCO FROM 9-00AM TO MIDNIGHT
ALL PROCEEDS WILL GO TO THE "FLOOD APPEAL"
==============================================================================================MUCH NEEDED "DROPPED KERBS" INSTALLED..After a long wait, there has been some dropped kerbs installed in Devonshire Road/Rottington Row. these should go towards helping some to mount/dismount the pavements.
THE LOSS OF A GOOD ASSET TO THE M.P.& C.D.G.
Recently the MP&CDG and SCDG lost a good campaigner in Lisa Penrith, who died suddenly, she will certainly be missed. one project she got moving was a "Sensory Unit" for Haverigg Primary School
Which is reported to be a great asset for the children...